EUA time

EUA is on Friday, but we are leaving for the trip tomorrow after her 3 year old appt. and pediatric clearance for anesthesia. Things that concern me this time are 1) her socket development-we have been getting bad reports since January (and are getting another opinion in a couple of weeks) 2) her complaints that she can't see things (when they are right in front of her) and that she can't see well. I am not sure if she is learning the latter this from another kid at school or if she is for real. Quite honestly, it scares the crap out of me.

Friday's EUA

We were in for her first EUA post Chemo last Friday. I was really really nervous for many reasons, but here are the real 2:

1) It was just me and my daughter this time. Dad stayed home so he could "work." I hope those quotes don't really need to be there.
2) Dr. Murray was going to tell me she has tumors in her right eye now and I would have to digest that by myself.

Well there were NO tumors in her right eye!!!! We don't have to be back until May 8th! That is about 10 weeks! It is really really great news.

So overall the trip was great. Can't beat cancer free. I was exhausted as our daughter just screamed all night long in the hotel. I am thinking of just driving out at 2:30am for next time....It would be the same amount of sleep, but I will have coffee in the morning....

Nothing New

Just nervous about this weekend (well Friday's EUA). Seems like her "birthdays" (18 months) all seem to bring life altering events. The first bringing her first cycle of chemo. Not my choice, but a hurricane made it that way. SO I guess that is the way it was meant to be. This time my daughter and I are doing it alone. I don't want it that way, but my husband has to work on his dissertation. HE HAS TO WORK ON HIS DISSERTATION!!!! No really, we really really need and want for him to get it done. I am nervous about 4 hours in a car with my daughter by myself. Grrrrrr. Think I will pack snacks and of course lollipops for the desperate times.

One more day to enjoy before "reality of cancer" hits us again.

BTW-she is doing GREAT post chemo-50% for everything! Her weight is climbing back up which is a great relief. She had dipped a little low for a while and is now gaining again!

Now if only I can get her to nap!!!!!