Busy Good last week!

My friend and her son came for a visit from MA. It was awesome! I haven't seen any of my old friends since last.........April, yes it was April. My husband hasn't seen anyone since last two Thanksgivings ago-it was so great and busy. Now that our daughter is out of chemo and fairing well (levels are normal, even with the port), we can DO things! Doing things is great. We first went to the aquarium. It is a great aquarium and our second visit. I am not thinking that she may be a tad too young to appreciate the experience. Then we went to the Lowry Park Zoo. This I LOVED. She liked it too and it wasn't so crowded that I felt nervous putting her down and letting her walk. We are going to do this again while Nana and Papa are here next week. Lastly, we went to WDW. It was nice and I am all over it now. Shocking! I know, it is sexist and racist, etc, but who can't buy into their wonderful marketing? Okay, it was my daughter's wave and excited yelling, "Hiah, Mickey!" at the parade that really got me. She also was obsessed with the Pooh ride (well maybe not the ride-more the giant picture of Pooh outside of the ride. "Hiah Pooh!" She melts my heart and along with it my hatred of all things Disney. That was a super long day that started off with her vomiting in the car, but it ending on a high note with two kids on sugar highs crashing to comas after a delicious take out meal.


So Nana and Papa are here next week!!!! I love having all these visitors, it really has been way too long. My husband and I are going to escape for a much needed "adult" break. Our first us time since our daughter has been born. My husband has been away, but not me. No more excuses and Nana is dying to watch her for a few days all by herself. I guess I have some control issues, but I am SOOOOOOO ready. My first overnight without my baby! We will be close enough by incase there is an eye emergency, so coming back to fix it will not ruin our vacation.



Speaking of eyes. She gets her custom eye Thursday. This month has flown by! I can't wait to see it! Another busy week passes and another busy week will begin. We are going to the Children's Cancer Center tomorrow, Orlando Thursday...Okay, so that is it, but both are good for their own reasons.

Her MRI is on St. Patty's Day. I hope that means good luck. I am nervous, although all things point to good news. Everything is just another hurdle...If we can just get through the chemo, if we can just get past the enucleation, if we can just get past the last three chemos, her first EUA post chemo......One step at a time.....