blogging thing. I am bored today..inside, don't know why I don't go out other than we have no money and it is HOT...welcome to summer time in Florida. Rowan is bored, but being a good sport about it...I just got a huge cuddly hug :). SO since last time, she had her EUA. It went well-still no tumors in her right eye. Dr. Murray doesn't feel the need to see her again until August. I am relieved, but nervous about that. I trust him as he is one of the best though. Her prosthesis report what not as good...it needed work. We went to Orlando a couple of weeks ago for that. The eye was thinned out, added to and thickened in some areas. For some reason, it looks not as good to me two weeks later...We go back to Orlando in July and I am pretty sure she will be getting a new custom one in September..or at least the mold will be cast then. She is growing incredible quick and still doesn't cease to amaze me. She is so smart and learning quickly. She now knows the cancer center is a friendly fun place which makes me happy. She loves it there. Don't know what we would do without them...I hope to get in their SOAR program soon for survivors, even though we are not out of the woods until she is 7 (?) and then there are always the high risk to other cancers we will have to worry about her whole life...
Anyway...Things are good. If you are in the FL area and can check this out:
Mandy's fair
Via her mom's blog.
Sunday, May 31, 2009
Monday, May 4, 2009
Present and short term future
Going out lots lately. I feel I've been too careless with my daughter. I need to take more caution and leave when I hear coughs or sniffles even if I know that person and they say their kid "isn't contagious." Before cancer, I wanted her to get exposed to build up her immunities...now....I just want to stay out of the hospital. Is it too early to be counting the days down to January? I guess-her next EUA is Friday. My emotions are all conflicted about this weekend. There is dread about the actual trip/car rides and hotel stays..there is excitement about meeting a long time friend finally face to face! I hope I suppress my dread in order to have fun with D, C and R.
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